Garrison Keillor on education, ideology and learning to read

As of today I've written about 45 posts reading and cognitive disabilities. Since my wife and I are basically bleeding-heart liberals (for want of a better term), it's particularly sad that the liberal establishment has often been opposed to evidence-based education in reading. Even today, there's a strong remnant of 1960s era approaches to teaching reading in Minnesota's educational establishment.

Today, a local celebrity and certified liberal, Garrison Keillor, writes on the topic as only he can:

We're failing our kids | Salon.com

... And then there is the grief that old righteous people inflict on the young, such as our public schools. I'm looking at U.S. Department of Education statistics on reading achievement and see that here in Minnesota -- proud, progressive Minnesota -- on a 500-point test (average score: 225), 27 percent of fourth-graders score below basic proficiency, and black and Hispanic kids score 30-some points lower than white on average, and the 30 percent of public schoolkids who come from households in poverty (who qualify for reduced-price school lunches) score 27 points lower than those who don't come from poverty.

Reading is the key to everything. Teaching children to read is a fundamental moral obligation of the society. That 27 percent are at serious risk of crippling illiteracy is an outrageous scandal.

This is a bleak picture for an old Democrat. Face it, the schools are not run by Republican oligarchs in top hats and spats but by perfectly nice, caring, sharing people, with a smattering of yoga/raga/tofu/mojo/mantra folks like my old confreres. Nice people are failing these kids, but when they are called on it, they get very huffy. When the grand poobah Ph.D.s of education stand up and blow, they speak with great confidence about theories of teaching, and considering the test results, the bums ought to be thrown out.

There is much evidence that teaching phonics really works, especially with kids with learning disabilities, a growing constituency. But because phonics is associated with behaviorism and with conservatives, and because the Current Occupant has spoken on the subject, my fellow liberals are opposed.

Liberal dogma says that each child is inherently gifted and will read if only he is read to. This was true of my grandson; it is demonstrably not true of many kids, including my sandy-haired, gap-toothed daughter. The No Child Left Behind initiative has plenty of flaws, but the Democrats who are trashing it should take another look at the Reading First program. It is morally disgusting if Democrats throw out Republican programs that are good for children. Life is not a scrimmage. Grown-ups who stick with dogma even though it condemns children to second-class lives should be put on buses and sent to North Dakota to hoe wheat for a year.

St. Michael, I beg you to send angels to watch over fourth-graders who are struggling to read, because the righteous among us are not doing the job.

For more on this topic see:

• Be the Best You can Be Helping Struggling Readers Explicit phonics instruction
• Be the Best You can Be NICHD (NIH) director lecture on helping children to read (1999)
• Be the Best You can Be Florida school district tries to sort out commercial reading intervention
• Be the Best You can Be Teaching Reading Scientific American March 2002
• Be the Best You can Be Another study on the superiority of phonics
• Be the Best You can Be Overview of trends in reading -- the phonics renaissance
• Be the Best You can Be Teaching reading to special needs children The Parental contribution
• Be the Best You can Be Teaching reading to autistic children whole word approach (for a contrary perspective)
• Be the Best You can Be Teaching reading to autistic children a limited literature
• Be the Best You can Be The curse of special needs reading BORING books

Reading goes to the dogs

The Strib writes about reading to dogs in the Ramsey county library system:

Libraries pair furry friends with phonics: "The Ramsey County library system introduced the Paws to Read program last summer, when therapy dog owners approached library administrators about volunteering. So far, the library system has hosted programs in Roseville, Shoreview, Maplewood and now Mounds View."

Saint Paul's been running the same program for at least six months. We've been regulars at two libraries. I can't say that it makes a great difference for our children, but they do like it.

A mouse model for schizophrenia

This was announced in July of 2007, but I completely missed it. I only read of it in a recent 'top 10 science stories' article.

Hopkins team develops first mouse model of schizophrenia

Johns Hopkins researchers have genetically engineered the first mouse that models both the anatomical and behavioral defects of schizophrenia, a complex and debilitating brain disorder that affects over 2 million Americans.

In contrast to current animal studies that rely on drugs that can only mimic the manifestations of schizophrenia, such as delusions, mood changes and paranoia, this new mouse is based on a genetic change relevant to the disease. Thus, this mouse should greatly help with understanding disease progression and developing new therapies.

Animal models of schizophrenia have been hard to design since many different causes underlie this disease. However, Akira Sawa, M.D., Ph.D., associate professor of psychiatry and neuroscience and director of the program in molecular psychiatry and his colleagues took advantage of the recent discovery of a major risk factor for this disease: the DISC1 gene (short for disrupted in schizophrenia), which makes a protein that helps nerve cells assume their proper positions in the brain.

As reported online this week in Proceedings of the National Academy of Sciences, the researchers generated mice that make an incomplete, shortened form of the DISC1 protein in addition to the regular type. The short form of the protein attaches to the full-length one, disrupting its normal duties.

As these mice matured, they became more agitated when placed in an open field, had trouble finding hidden food, and did not swim as long as regular mice; such behaviors parallel the hyperactivity, smell defects and apathy observed in schizophrenia patients. Magnetic resonance imaging (MRI), taken in collaboration with Susumu Mori, Ph.D., professor of radiology, also revealed characteristic defects in brain structure, including enlarged lateral ventricles, a region that circulates the spinal fluid and helps protect against physical trauma.

Sawa notes that the defects in these mice were not as severe as those typically seen in people with schizophrenia, because more than one gene is required to trigger the clinical disease. “However, this mouse model will help us fill many gaps in schizophrenia research,” he says. “We can use them to explore how external factors like stress or viruses may worsen symptoms. The animals can also be bred with other strains of genetically engineered mice to try to pinpoint additional schizophrenia genes.”

Mouse models for human disorders of the mind are hugely important. In 2006 I wished for a murine autism model (twice, actually) and in 2007 there were hints of some models (MECP2 based). I didn't realize that a DISC1 model also existed for schizophrenia.

Of course as I always mention, autism and schizophrenia are fuzzy labels we apply to what's likely to turn out to be many diverse neurologic disorders.

A mouse model is to thought disorders as the telescope was to learning about the universe. It's progress we can celebrate.

Treating impulsive aggression: HUGE placebo effect is better than Risperdal

Impulsive and irritable aggression is a big issue in low IQ adults and children. Risperdal, in particular, has been heavily prescribed for this problem over the past ten years.

One study in adults suggests it doesn't really work; but note that it's approved in the US for children with autism -- it wasn't studied in that group. (The journalists language, btw, implies it's often used for mere ADHD alone; that's not true.)

The amazing part of this study, was the placebo effect.

Drugs Offer No Benefit in Curbing Aggression, Study Finds - New York Times

The drugs most widely used to manage aggressive outbursts in intellectually disabled people are no more effective than placebos for most patients and may be less so, researchers report....

In recent years, many doctors have begun to use the so-called antipsychotic drugs, which were developed to treat schizophrenia, as all-purpose tranquilizers to settle threatening behavior — in children with attention-deficit problems, college students with depression, older people with Alzheimer’s disease and intellectually handicapped people...

The new study tracked 86 adults with low I.Q.’s in community housing in England, Wales and Australia over more than a month of treatment. It found a 79 percent reduction in aggressive behavior among those taking dummy pills, compared with a reduction of 65 percent or less in those taking antipsychotic drugs.

The researchers focused on two drugs, Risperdal by Janssen, and an older drug, Haldol, but said the findings almost certainly applied to all similar medications. Such drugs account for more than $10 billion in annual sales, and research suggests that at least half of all prescriptions are for unapproved “off label” uses — often to treat aggression or irritation...

... Previous studies of the drugs’ effect on aggressive outbursts have been mixed, with some showing little benefit and others a strong calming influence. But the drugs have serious side effects, including rapid weight gain and tremors, and doctors have had little rigorous evidence to guide practice.

... Janssen, a Johnson & Johnson subsidiary, said that Risperdal only promotes approved uses, which in this country include the treatment of irritability associated with autism in children.

In the study, Dr. Peter J. Tyrer, a professor of psychiatry at Imperial College London, led a research team who assigned 86 people from ages 18 to 65 to one of three groups: one that received Risperdal; one that received another antipsychotic, the generic form of Haldol; and one that was given a placebo pill. Caregivers tracked the participants’ behavior. Many people with very low I.Q.’s are quick to anger and lash out at others, bang their heads or fists into the wall in frustration, or singe the air with obscenities when annoyed.

After a month, people in all three groups had settled down, losing their temper less often and causing less damage when they did. Yet unexpectedly, those in the placebo group improved the most, significantly more so than those on medication....

Holy cow. That's one hell of a placebo effect.

A typical placebo effect should have been around 30% improvement. In that case Risperdal would be looking great today.

In this group the placebo effect is MUCH larger than expected.

If this is born out in f/u studies, we need to figure out how to leverage that. Why was the placebo effect so large? Was it due to a change how peers and caregivers treated the study participants? A synergistic effect between the study participants expectations and behaviors and those of his (most are male) caregivers?

There are two interesting results in this study, but if we can harness that placebo effect then the net result is actually very positive for special needs adults. We don't know if children would have such a huge placebo response, so the study needs to be repeated in children.

OS X: automated spoken summary of email messages

This post is about using OS X's built-in summary and speech functions for persons with limited vision, but it's probably broadly useful to anyone with language challenges.

Gordon's Tech: Email Summary and speech

.... My mother's vision is failing. This is something she could use, though I've already programme done key to active the built-in generic reading engine. Too bad Mail.app doesn't let me attach a script to a nice fat icon, but I might create a rule that would routinely read each message she opens. (Rules are hidden away in mail preferences -- which is not a logical place for that function.)"

Tips for academic organization

Giving Disorganized Boys the Tools for Success - New York Times doesn't have any major new advice, but it describes typical organizational measures that should probably be started in grade school.

Autism society of Minnesota: camp experiences

We received this notice from the ASM listserv. I've edited the note slightly. Summer camp attendance is a prerequisite for the winter program.

The Autism Society of Minnesota Camp Hand in Hand Winter weekender

... A Camp Hand in Hand Winter Retreat for Youth 9 – 18 on the Autism Spectrum
A few spots are still left! Register by Monday, December 17!

January 19 – 21, 2008
Camp Friendship
Annandale, MN

Take part in a wide variety of fun, structured indoor and outdoor seasonal activities during this 3-day winter holiday during Martin Luther King, Jr. weekend. Campers will stay at the beautiful 115-acre Camp Friendship located on the shores of Clearwater Lake near Annandale, MN. Facilities include modern cabins and a lodge with a canteen and game room. Specially trained Camp Friendship staff will lead activities.

Campers will be supported by AuSM-trained staff at a 2:1 camper to staff ratio. A licensed and experienced nurse will provide 24-hour medical care.

Activities include:

Cross country skiing
Snowshoeing
Ice fishing
Sledding
Broomball
Arts and crafts
Music
Gym games
Climbing wall

This camp is appropriate for children who attend Camp Hand in Hand during
the summer. If you are unsure if it is right for your child, please visit
our website and read the descriptions of Camp Hand in Hand and Camp
Discovery. We are also happy to answer your questions.

Registration
Camp fee is $330.00

A $100.00 non-refundable deposit is due with registration. Final payment is due January 10, 2008. Registration deadline is December 17, 2007. Space is
limited. Camper spots will be filled on a first come, first served basis. You must be a member of AuSM to register.

The MN Special Hockey season II is underway

The South Stingers are looking good.

This is our second full season. We're still open for new players -- all ages, genders and abilities.

The only entry requirement is a cognitive disability including ADHD (more to the severe side), autism, Asperger's, Down's and more.

MN Special Hockey has two other teams, one in Woodbury and another in Blaine. The Stingers are in Edina.

Try it.

Reading about autism and ADHD - our personal favorites

More than a year ago I started an "introduction to autism" post. I'll return to it some day, but I'd like to say something today about what we've read that, in retrospect, was most useful.

First, an important caveat. My wife and I are physicians. We don't bother with popular books with a medical emphasis because we know that stuff. So our reading is biased towards behavioral and legal topics.

We've read a lot over the years. You can click on this snapshot of our library to get a quick review of the books we've kept.

Not all the books are equally valuable however, and not all the most important reading has been in books.

There are two items that stand out. The first is a book, the second a throw away newspaper article.

The most important is Greene, The Explosive Child. This is from my Amazon review:

If I had to choose the most important book I've ever read, the one that most influenced my life, the one book I could not afford to have missed, it would be this book.

We read it about seven years ago. My marginalia sprawled from the pages to the back covers, replete with emphatic circles, arrows and double underlines...

...There are some quibbles I have. Time outs, for example, work well if they're used as calming interventions that last from seconds to a minute (even though we call them "punishments" since that's what our son prefers, they are only to allow him time to calm himself).

The fundamentals, are as sound as can be. I most appreciate the modesty I remember. Greenes is frank that not every child has a happy ending -- no matter the interventions. We're talking a serious struggle here...

... Even if you have a merely difficult child, or straightforward ADHD, or mere high IQ autism, or simple Asperger's, you should read this book.

If you have an explosive child, you must read this book...

The other one is very short. Yes, a NYT article about using 'extinction' in animal training.

I think of "extinction" when working with children as an advanced technique. It must be done in such a way that it does not induce anxiety, and the child has to be able to calm themselves when others withdraw. It doesn't work if the child will pursue aggressively, or react with destructive or dangerous behaviors.

It is, however, powerful.

Those are the top two. I also particularly remember Welcome To Alaska, one or more of Temple Grandin's books on life with high IQ autism, and Benjamin Pollis "Only a Mother Could Love Him" - an insider's guide to life as an explosive child with severe ADHD.

The rest of our reading is more routine. Any number of references on Personal Care Attendants or disability law will suffice.

Update 5/3/10: For the adolescent phase of special needs life, I like a book written about selling, sales, and persuasion: 3 Steps to Yes by Gene Bedell.

Free-reading: an open soure reading program

Oddly enough, I came across this via a Slashdot post:

Main Page - Free-reading: "Free-Reading is an “open source” instructional program that helps teachers teach early reading. Because it's open source, it represents the collective wisdom of a wide community of teachers and researchers. It's designed to contain a scope and sequence of activities that can support and supplement a typical “core” or “basal” program."

A while back I'd thought of developing a library of short stories that could be used in reading programs; including more boy oriented stories. They're doing something like this.

There's some content in place and it has a real advisory board:

Catherine Snow

Henry Lee Shattuck Professor of Education

Harvard Graduate School of Education

Michael Kamil

Consulting Professor of Education; Psychological Studies in Education; Learning, Design, and Technology

Stanford University School of Education

Barbara Taylor

Guy Bond Chair in Reading

University of Minnesota

Director of the Minnesota Center for Reading Research

Barbara Kapinus

Senior Policy Analyst

National Education Association

Fred Carrigg

Director of Humanities K-12, Middletown Public Schools

Former Special Assistant to the Commissioner for Literacy, NJDOE (2002-2007)

I think most of the contributors are teachers. They claim to have an evidence-based philosophy, that would mean a much stronger phonics orientation than is common in Minnesota.