Dating and relationships on the spectrum: AUSM presentation and reading list

#2 and I attended the first of a planned series of Autism Society of Minnesota (AUSM) presentations: Dating and Relationships: How Does This Work?

It was awesome.

There were two parallel tracks. A track for spectrum teens 12-19 was led by Jeannie Uhlenkamp, author of  The Guide to Dating for Teenagers with Asperger Syndrome. A session for professionals and parents was led by Sara Pahl and Dawn Brasch. The teen track would have been challenging given the variety of interests and learning features. My track is best summarized as “so we’re not the only ones”; between #1 and #2 I could have spoken to every topic. (And suggested a bunch of additional topics for a future “advanced” track.)

The frank discussion of the legal aspects of spectrum sexuality and choices was particularly appreciated.

This needs to be turned into a video series for wider use. I understand the AUSM has plans in that direction.

For now, here is a reading list from today’s session:

• The Guide to Dating for Teenagers With Asperger Syndrome: Jeannie Uhlenkamp: 9781934575536 (by the speaker). Despite the title this also works for #1, who is on spectrum but not Asperger.
• Dating For Dummies: Joy Browne: 9780470892053: Amazon.com: Books. Not written for spectrum teens, but recommended by speakers.
• Socially Curious and Curiously Social: A Social Thinking Guidebook for Bright Teens and Young Adults: Michelle Garcia Winner, Pamela Crooke: 9780884272021 (illustrated)
• Decoding Dating: A Guide to the Unwritten Social Rules of Dating for Men with Asperger Syndrome (Autism Spectrum Disorder): John Miller: 9781849057806
• The Autism Playbook for Teens: Imagination-Based Mindfulness Activities to Calm Yourself, Build Independence, and Connect with Others (The Instant Help Solutions Series): Irene McHenry PhD, Carol Moog PhD, Susan Kaiser Greenland JD: 9781626250093
• The Aspie Teen's Survival Guide: Candid Advice for Teens, Tweens, and Parents, from a Young Man with Asperger's Syndrome: J. D. Kraus: 9781935274162

Managed identity for the special needs Explorer: iCloud makes aliasing easy

From Smartphone for all …

When you first begin supporting your Explorer a single address for them to send and receive email is fine. You may find, however, that you want another, secret, address for your Explorer. You might not want to expose their private email address when signing up for Facebook for example. You may not want them to be able to reset their bank account password. With experience you’ll find many occasions where want to use an email address for an Explorer that sends email to a Guide.

There are three ways to create this kind of email address for an Explorer, depending on what the Guide is familiar with.

If the Guide is using iCloud things are very simple. iCloud email has elegant support for up to 3 “aliases”. A guide can create an “alias” for an Explorer; that email becomes the Explorer’s “managed identity”. Here’s an example of an alias created for a famous Explorer - Meriwether Lewis of Lewis and Clark fame:

If Meriwether were my Explorer and I configured this alias on my iCloud email then I would receive email sent to mlewis_ident@icloud.com (careful, someone is sure to create this email address, I don’t use it!). I might do this so I can monitor Facebook activity and control password resets for example. (see Facebook Social and Facebook Messenger). See Apple’s support note for more information: https://support.apple.com/kb/ph2622.

If a Guide is using regular Gmail they can’t create an alias. They can, however, open a new Gmail account for the Explorer and set it to forward email. This is awkward and requires yet another password to manage, but it only has to be done once.

Lastly, technically oriented Guides will know of other email redirect options that are beyond the scope of this book. (I don’t recommend using a free redirect service however, there are too many security risks.)

All of these approaches will work to create this extra, secondary, email address. This secondary address doesn’t get entered into your Explorer’s phone, it’s just for use by a Guide, typically though a web browser like Chrome. 

You don’t need to add this second, Guide-use only Explorer email at first, but keep it in mind as you gain more Guide experience.

Why "Smartphone for all" needs to be written (and read) - special needs adults need a pocket AI too.

After reading Everyone needs an AI in their pocket I updated the “why you should read this” introduction to “Smartphones for all”

You’re reading this because your Explorer is seeking independence in a world of ubiquitous technology, technology that’s currently packaged in an Android (Google) or iOS (Apple) smartphone.  We’re growing accustomed to smartphones as our companion computers, but if you step back a bit they should inspire genuine awe, as well as some concern. The personal computer and the internet both had large impacts on society, but the smartphone, an ever present emerging artificial intelligence companion, is kicking everything up a notch. 

It’s already hard to function without a smartphone, but in time it will become almost impossible. In March of 2016 a Washington Post article^⁠1 was titled Transit systems are growing too complex for the human mind. That sounds bad, but on the same day Google published an article^⁠2 about the latest improvements to the “AI” (artificial intelligence) engine that provides its transit advice. Want to get around London or Manhattan or Minneapolis? No problem, just ask Google.

Everyone will needs an AI in their pocket, including the teen or adult you’re guiding. Since smartphones aren’t made to serve our Explorers I’ve written this book on how you can help them succeed. The goal of this work is to support independent living and mitigate harm that can come to a vulnerable population living with a tool of amazing, sometimes frightening, power and versatility.

¹ https://www.washingtonpost.com/news/wonk/wp/2016/03/03/transit-systems-are-growing-too-complex-for-the-human-mind/.

² http://googleresearch.blogspot.com/2016/03/an-update-on-fast-transit-routing-with.html

Smartphone for all: Promoting independence with home video monitoring

I’ve rewritten my chapter on Nest Cam use: Special needs smartphone: draft sample sub-chapter on Google Nest Cam use. In the new version I go into more detail on how video monitoring can be used to support independence. Use may be transient…

For Explorers with life-threatening medical disorders home video monitoring may be a longterm aide. For this use the Nest Cam (or other) video-active light would be active. That is, the Explorer knows when they are on video. The Nest Cam may be setup in a kitchen or living room. This kind of use is very similar to using video monitoring for elderly parents.

For many other Explorers, however, video monitoring may be a temporary aide to independent living. An Explorer may become dependent on  having a Guide nearby, when left alone they may become anxious, particularly anxious about meeting expected behavior standards. Anxiety can translate into problem behaviors, such as harassing siblings or arguing with roommates. In this case a home video monitor can be a transitional aide, a step between having a Guide at hand and going solo.

In this case the Nest Cam video on light may be either enabled or disabled; Guide and Explorer can experiment with both methods. A Guide may leave a home and observe remotely, then decrease observations and increase time away as both Guide and Explorer gain confidence. After initial use the monitor may be used very infrequently and eventually removed.

In another situation there might be a concern about what time of day an Explorer living on their own leaves for work or school. A guide might use the techniques in the Tracking Location chapter to check in this, but either an on-demand, or more conveniently, a stored video record could help. Once the concern is managed the stored video feature an be discontinued or the camera can be removed. Stored video may also help with reviewing home visitors if there are concerns about exploitation of a vulnerable Explorer.

In many cases a Nest Cam or similar video monitor may be used for a limited time, you can remove your account information and another person can use it.

Smartphone for All: Working with a budget

I’m still working on a Smartphone for all chapter about how to manage smartphone costs within the typical $92/month SSI disability managed residence personal spending budgets and the rules around external support, but I do have first drafts for introduction and carrier selection…

In the United States the least expensive useable and reliable smartphone mobile plans cost about $30 a month. A reliable low cost smartphone, with typical tax and shipping, costs between $120 for Android and $285 for an iPhone. That means a cost of about $840 over the typical two year lifespan of a low end Android device, or $1,000 for a refurbished iPhone (but the iPhone will last longer).

This cost is high for an Explorer on a typical low fixed income, but without careful shopping the price can be much higher. With a deluxe iPhone and a premium mobile plan total costs could exceed $2,770 over two years! Mobile carriers are good at getting consumers to pay these very high prices, but this would be disastrous for most Explorers. Even a yearly average cost of $840 to $1000 is going to require careful budgeting and control of data use, it helps that a smartphone replaces a $250 landline.

and 

It used to be quite hard to know what it really cost to buy a smartphone and buy carrier services. It’s easier than it used to be, but sorting out costs can still be confusing.

The best approach for a Guide to start by choosing a mobile service provider or “carrier” that works for your Explorer. All US carriers support both iPhone and Android, and once you choose a carrier you will have more options for choosing a device. More importantly the cost of mobile service over a two year interval will usually exceed the cost of an appropriate smartphone.

Unless an Explorer can be added to a “family plan” at an affordable rate, carriers like AT&T and Verizon are too expensive. Instead begin with a look at T-Mobile or small carriers that resell big carrier services. The latter includes Republic Wireless, Consumer Cellular and Ting Wireless. 

Ting Wireless is a good reference point. Their web site is a marvel of clarity. With Ting customers purchase base capacity and overage fees are relatively affordable. Ting allows alerts and usage caps to help users stay within their budget — those are big features for low income users.

A typical Explorer may use less than 60 minutes of “talk time” a month, less than 100 SMS messages (ex: Facebook Messenger is free), and 500 MB of data no video. At Ting Wireless those services will cost $24 a month plus “regulatory fees/taxes” (likely @ $30).

Ting, like many of these low cost no contract carriers, sells low cost devices including refurbished used smartphones. This is a cost-effective and relatively trouble-free way to purchase a smartphone. As of Feb 2016 a refurbished iPhone 5c sells for $237 and a new Samsung Galaxy sells for $110.

In some cases an Explorer will have a used device, possibly from a family member. Ting will confirm if the device works with their service.

Whichever option you choose watch for hidden fees. Some carriers have hidden “activation” fees and all carriers exclude “regulatory fees and taxes” from their list prices. T-Mobile often hides its best deals, Google will help find them. Even if you don’t end up using Ting Wireless, their prices make a good comparison.

In terms of supported smartphone use I wonder how often families “loan” a device…

Smartphone for all: "Parental" controls and managing messaging abuse

It’s hard to get good information on managing smartphone use for a vulnerable person — aka “parental controls”. Especially for Smartphones.

Vendors sites often promise more than they can deliver and provide little information on how they work. Vendors are also understandably reluctant to discuss side-effects and problems. The tech resources I trust tend to dislike the whole idea of parental controls (writers are too young!), and Google search results are dominated by vendor sites, spam blogs, and under-resourced newspaper columns. Parents and “Guides” (supporters of vulnerable users, aka “Explorers”) are truly at sea.

Ok, so “At sea” is a bit polite. Screwed is probably more accurate. The next time your TV tells you that that it’s “easy to monitor your child’s smartphone use” you have my permission to put a brick through the screen.

It’s hard to get reliable information, but I need to cover this topic in my smartphone for all book. So in this post I’m going to share my current impressions — I’d love to get comments here or elsewhere. My impressions are certain to change as a I learn more. For insight on Android solutions I need to credit a review by Brian Hall [1]; just ignore anything he says about iOS and iPhones. For example, he is impressed by the ability of third party Android apps to track location or limit app installation — but those capabilities have long been part of every iPhone. I don’t blame Brian, it’s hard to know both Android and iOS [2] and content farm writing is hard work.

My impressions:

• Brian’s article focuses on filtering and restricting rather than monitoring. For a vulnerable adult I think monitoring is just as important — but it’s harder to do.
• iOS (iPhone) has far better built-in restriction options than Android, but it needs better texting/messaging controls and it needs time limits [3]. If you want to restrict or eliminate Text Messaging on a stock iPhone you need to both disable iMessage [4] and have a mobile carrier that allows restriction or monitoring of SMS texting (typically for a non-trivial monthly fee).  A parent or Guide may consider something like Facebook Messenger (https://www.messenger.com/) [5]. Messenger’s web client makes it easier to monitor than SMS or iMessage — assuming one has control of an Explorer’s credentials. It can be used separately from Facebook.
• It’s easier to extend Android than iOS, so Android plus a separate app and service has some advantages over iOS. This may be particularly true for texting controls. I don’t know how these impact device reliability or usability, I read that some of them are difficult to install. From Hall’s review I’d say Norton Family Premier is the only solution worth looking at, but it has weak texting/messaging controls
• This party solutions for iOS leverage the tools Apple built for corporate iPhones. These tools are limited but they are well tested. The main strength is web filtering and monitoring, but that’s less useful in the Facebook age when, for many “Explorers”, browsers can be disabled with little impact. (Disabling the browser is easy to do on iOS, but requires a third party product on Android.)
• Social networks (Facebook, Snapchat, Instagram, etc) can only be monitored by using a user’s credentials; that is, by assuming their identity. This probably violates the Terms of Service of these businesses and it’s too complex for many Guides or Parents to take on. I do discuss it in my book though.

My primary surprise is how hard it is to support safe use of old school SMS/Messaging. It seems to have never occurred to Apple that this would be a good option to provide, and, of course, Android defers all of those concerns to third party developers.

 

- fn -

[1] Published on a content-farm site with a name suspiciously reminiscent of Tom’s Hardware, a famous geek resource. Such is the state of the 2016 web. Once BYTE would have done a fabulous review, but it died long ago. I think we pay a price for that kind of absence.

[2] So have sympathy for me!

[3] Time limits are usually more important for children than for independent adults with cognitive disabilities. Lack of texting/messaging controls are annoying though.

[4] Log out of iMessage in Settings, then lock accounts in restrictions.

[5] Yes, Facebook, famed invader of privacy and exploiter of customers is now the “safer” option. For now!

Smartphone for All: Examples of using Apple Notes.app or Google Keep.app to extend memory and independence

A Smartphone for All: book excerpt, from a chapter on using Notes. 

This post has been updated with some excellent additions by Deb T. In addition to being a part of the book, it also illustrates how complex a special needs adults independent living really is.

————

Whether an Explorer is following the Apple Way or the Google Way their notes will look very similar. They’ll typically start with a handful of Notes created by a Guide, but the number will grow over time. Some Explorers will add their own Notes. 

Most Explorers will prefer to browse Notes rather than search for them. Typically Notes will be ordered by the date they were last changed with the most recently changed Notes at the top. The first line of a Note will typically show as the Note title, so make it descriptive.

If an Explorer is using the Search ability they are probably also creating and editing their own Notes. When using this function it’s helpful to put likely search terms in the note, perhaps as a list of words at the button of a Note.

Notes can be organized into named collections called “Folders” in Apple Notes.app or organized by “Labels” in Google Keep.app. This adds complexity however and should only be considered if an Explorer has more than 50 notes and really dislikes using Search.

There are many ways to use Notes to extend an Explorer’s memory. The following table gives a few examples taken from real world experience; this table also shows how complicated an Explorer’s routine can be.

Many of these Notes hold non-sensitive or public information, but some require that both the Explorer’s smartphone and Cloud information are truly secure. We reviewed this in Setting up an Explorer’s Smartphone including an encrypted smartphone, long letter-number smartphone unlock codes, fingerprint identification, a responsible Explorer, short timeout auto-lock, and a strong Cloud password.  Some low end Android phones may not be encrypted, don’t put confidential information into Google Keep on those devices. In the table below items that require a secure device are italicized.

 

Note Title	What’s in the Note
Banking information	Bank account information, how to make deposits or withdraw money or find balance, ATM PIN code if Explorer has difficulty remembering it, numbers to call for a lost or stolen credit card.
Bicycle	Bike maintenance advice, serial numbers, what to do if lost or stolen.
Budget	Notes about when bills are due, how to pay, wise limited on spending.
Church, Temple, etc	Names of religious leadership, times of services, people who are part of religious life, social events coming up.
Clothing sizes	Sizes for clothes, boots, shoes.
Combination locks, PINs and passcodes	We all have too many of these. A single Note is a good way to hold them all, but of course this requires a secure smartphone and a secure Cloud.
Dates	Important dates, such as birthdays and anniversaries. (Duplicates what’s on the Calendar, but often useful to have separately.)
Emergency Information	Who to contact in case of an emergency. This is not the Emergency information that’s part of Apple Health.
Family photos	How to view family photo shares.
Financial worker	For many Explorers the Financial Worker (benefits admistration) is separate from the Social Worker and there are different procedures to follow. Some Explorers will want Notes combined, others will like separate notes.
Fun stuff	Notes to support local recreation, leisure and fun activities; a helpful resource for independent time scheduling. An Explorer or Guide may use this Note when working on the Calendar. For example: movie theater, pizza and sub delivery, church, etc. Gym information might go here instead of the Gym Note.
Gym information	Open hours, class schedule
Home	Apartment/group home details including contact numbers (also in Contacts), look out procedure, how to request maintenance, how to work with the rental office.
Library information	Schedule, library card number, WiFi procedure.
Medical history, dental and health insurance numbers	To share with caregivers, particularly in an emergency. Includes major medical problems, current medication, providers, people to contact, insurance numbers.
Neighbors	Names and addresses of neighbors, particularly for Explorers who have difficulty remembering names or matching names to people. This may duplicate what’s in Contacts.app (address book) but is helpful to have separately.
Passwords and credentials	Username, passwords, web site address (URL), “Secret questions” with the answers used.
Relatives and special people	Names and birthdays of extended family and special family friends. May be combined with Neighbors.
Residential program manager/staff contacts	Some of these will also be in Contacts, but this is important information for many Explorers. It deserves a separate Note.
Smartphone tips and how to	Basic smartphone tips. If appropriate for Explorer a reminder of how to find the smartphone manual (example: iBooks).
Social worker	Name of social worker and how to work with them, particularly around bus and transit services. The Transit Note might refer here, and the Social worker information might also be in Contacts.
Social Security and Disability Information	Contacts and details, spending limits and reporting requirements.  Date of next follow-up (this would also go in the Calendar).
Sports teams and social group	For each sports teams and social group useful information such as link to team calendar, names and numbers of coaches and players.
Staff and aides	Names of support staff and contact information. This will also be in Contacts.app
Transit	Guides to transit including bus pass information if applicable. Reminder of how to use a transit app to get bus information.
Travel and packing	Packing and travel advice for a short trip.
Web addresses	Generally web addresses will be part of other Notes or they’ll show up on the Credentials page, but in some cases it’s useful to have a short separate list.
WiFi locations and WiFi passwords	Explorers need WiFi to backup their smartphones or download new apps, but they may not have WiFi at home. In some cases it may be useful to list locations and passwords, such as Coffee shops or the Apple Store. Library WiFi information may go here or in the Library Note.
Work and work training program.	Supervisor and care manager and any work requirements or procedures including transportation arrangements.

 

This is a long list, but the the more independent an Explorer is the more their Notes collection will grow. A Guide should start with 4-5 Notes then work with an Explorer to build out the Notes collection.  Many Notes may begin as information sent in an Email; very few Explorers will search email for reference information.

Some Note content overlaps with Calendar and Contacts. A moderate amount of duplication is needed, but too much becomes a maintenance burden. The appropriate location will vary by Explorer, but the Calendar is particularly important.

Most Explorers will learn to update and manage their Notes; that is a great life skill to encourage. Managing Notes includes deleting obsolete Notes, a Guide will want to make Notes review, including deleting obsolete Notes, a part of their scheduled weekly Explorer support time.

Smartphone for all: Android or iPhone?

I’ve rewritten the “which smartphone” section of my Smartphones for All: Independent Living with iPhone and Android book at least four times.

Despite my iPhone background I started out leaning towards Android for my book audience — I have not been entirely happy with Apple’s iCloud services and I was impressed by the value for dollar of my moto E. Then I spent some more time with my Android phone; trying to see it from the perspective of a “Guide” reader and “Explorer” user. That experience helped me understand why my Calendaring Survey showed a strong iPhone bias among non-experts who use a Calendar and other productivity tools. (Expert users of Android devices use Calendars extensively.)

I ended up with this recommendation:

The iPhone is the better choice for Explorers who don’t lose or damage their devices and who can afford the premium price. The iPhone wins because it’s simpler to use and manage, there are fewer security and malware issues, there are stronger Accessibility features for vision, motor and hearing issues, Apple Stores provide excellent support, and the iPhone has more options for restricting features — something that’s important for a vulnerable user.

Those are big advantages, but the Android alternatives have strengths as well. An entry level Android phone, like the moto E, can be bought for was little as $100. That’s not the price with a phone contract, that’s the full retail price. A comparable entry level 32 GB iPhone 5s costs $500; $400 more than the Android phone. (The iPhone 5s will last longer with good care however.)

There are also some functions, like email spam filtering and Calendar sharing, that are more capable on an Android phone than on an iPhone.

Familiarity is another important consideration. Both Explorer and Guide will prefer what they already know, and it’s easier for the Guide if the Explorer uses a familiar device. It’s especially difficult for an iPhone-using Guide to support an Android-using Explorer.

The bottom line is that while an iPhone is the better choice for most Explorers, price and familiarity are very important. In this book I’ll explain how to support an Explorer with either device.

Smartphone for all: the Guide is impersonating the Explorer. There's a problem there...

It’s only in writing or teaching something that we come to understand it. I’ve been guiding my two special needs Explorer’s using their iPhones for at least five years, but I only today realizes why the Guide role works — and why it might get harder.

I’ve put the key concepts into a book chapter (Smartphones for all) about Guide tools:

A Guide could implement many of the recommendations of this book by working on an Explorer’s smartphone every evening. You could take it in your hand and review emails, enter Calendar items, update Contacts, review Facebook Group membership and so on.

You could do that, but it wouldn’t be practical even if your Explorer lived with you. If your Explorer is an adult with their own residence it’s even less practical.

The Guide’s role is possible because of two features of today’s digital world. One is that information on a smartphone is commonly synchronized (actively duplicated) with a secure online store. The other is that it’s possible for a Guide to assume an Explorer’s identity if they know the Explorer’s digital credentials, typically their “user name” and password. These two features weren’t designed to make the Guide role possible; nobody at Google or Apple has been thinking about Guides and Explorers.

It’s easiest to understand this using an example like a Calendar. A capitol-C Calendar is how this book identifies a calendar viewed and managed by an application like the iPhone’s Calendar app (Calendar.app). A Explorer views today’s Events (appointments, scheduled things they need to do) on their iPhone, but the same Events are stored online. A Guide, using the Explorer’s credentials, can manage the Explorer’s Calendar Events using a web browser. Whatever changes the Guide makes will, typically within a few minutes, appear on the Explorer’s iPhone.

The ability to assume an Explorer’s identity is a tricky issue. Many children use their elderly parent’s credentials to their online banking, and bank staff know this very well, but it’s also explicitly forbidden. Google and Apple usually know a smartphone’s location and more or less know where a computer is located — having the same digital person in two places will trigger email warnings. For at least the next few years this will be manageable, but we Guides need to all encourage Apple and Google to support proxy users, either by better  ways to share things like Contacts and Calendars, or by formally supporting someone like a Guide. The good news is that aging parents are going to drive changes that will also support younger Explorers.

I’m pretty sure neither Google nor Apple have thought much about the needs of a special needs smartphone user, though Apple in particular has done quite a bit of work to support persons with motor, visual and auditory disabilities (“accessibility”). So they probably haven’t considered why hacking into someone’s email might be a feature, not a bug. I expect it will get harder for one “person” to be in two places at the same time; we might in time see more than warning emails.

There are several reasons for optimism though. When we leave our computer at home logged into our online accounts, and work with the same data on our smartphones, our digital self is in two places at once. A second reason is that the education market has similar needs for a supervising person to work with a student’s account data.

Most importantly however my generation are going to create large numbers of customers who are being supported by their children.

Current trends are encouraging. Banks are adding authorized surrogates and Google and Apple will likely do the same. Google already has the concept of an “Inactive Account Manager” to provide authorized access to a second user in the event of death, disability or disappearance. Apple has the concept of the iCloud “Family” for sharing media and locations. Both Apple and Google support some sharing of things like Calendars.

We have multiple market needs and the outlines of several solutions. So I think the ethical impersonation that allows me to be a Guide is going to go legit. Maybe this blog post will help a bit, and I’ll try to get something like this into a bigger forum. I’m hoping the book will help a bit too. Know anybody at Apple or Google who wants a copy?

Autism and interest depletion - leveraging routines, calendars and checklists

As #2 enters late High School his interests have narrowed considerably. This means he has fewer options if he bores of the interests he does have, and increasing amounts of his time are spent in passive and compulsive screen activities that seem to produce dysphoria and ennui rather than satisfaction or happiness. It’s a common trend that seems unlikely to lead to a satisfying or independent life.

Fortunately, he’s aware of this and, when he’s not working through what I think of as an “autistic-arrest” (sudden deterioration in perception of self and context, often associated with anguish and psychic distress), he’s interested in working on it. He’s had some success, including introducing new activities like mountain biking, weekly five mile walks and routine calendar review. We’ve created an inventory of his interests categorized by:

1. Enjoys with cravings -- time limited by parents/external actors
2. Enjoys with cravings -- no time limited (bouncing on exercise ball in in this group)
3. Enjoys but no compulsions — tend to get displaced by craving activities, but if initiated they are enjoyable for him
4. Sometimes enjoys, feels good after doing. All exercise except bouncing falls into this category.
5. Things to try — items we (he, us) have selected to try to broaden his interests and provide him with more options.

As per the book excerpt on calendaring, we’re working with him to create recurrent schedules for his Category 3-5 items, staring with book reading. He’s receiving a small stipend for each book completed; he finds it very helpful to have us give him a concrete reward for completion of a new or challenging activity. It’s a curious part of his temperament that we’ve all learned to leverage.

Our thinking about this has been supported by some archived 2007 writings by Joel Smith, an autism activist. (#2 adamantly refuses to read blogs or writings by people with autism, but I follow Joel’s current blog). Joel was using a PalmOS PDA back then, my book project is about smartphone use.

This Way of Life: Living With Executive Dysfunction (Joel Smith)

… Train yourself to follow a routine, with few deviations. The closer you follow a standard routine, the more likely you are to remember it … The more frequently you use a routine, the more likely it is to become a habit…

… solving the executive function difficulties probably won't solve the problem without you first solving the other underlying problems. In addition, your strategies will not motivate you to do a task you don't want to do. These strategies will only help you perform tasks that you want to do…

… Get rid of strategies that don't work. If, after a week you aren't able to establish the strategy, it probably won't ever actually work. If, after a month, you are still doing the strategy, you will probably be able to keep doing it…

… Sggab (amanda at autistics.org) finds that having someone else to watch over her helps her to complete tasks and overcome the problems with starting a task. Some people find that having others call and remind helps get a task done. However, others claim that such reminders only reinforce inertia, so this may be very individual specific…

… Kalen (news at paradox.freeserve.co.uk) says that an externally imposed schedule, such as the kind of schedule a student in formal education must follow, helps her start all her other routines, and also improves her overall functioning…

… I use a Palm Pilot to help organize my time. Even the cheapest Palms, such as the will help some who have executive function difficulties.

The most useful features of the Palm are the to-do lists and calendar. One of the advantages of some of the newer models is the "silent alarm" feature. Reminders can be set to alarm by vibrating instead of beeping, which allows you to get your reminders discreetly and without disturbing others in a class or event.

I also use an enhanced version of the Palm ToDo list, called “ToDo+”...

The entire article, and his reminders and checklist page, are well worth reading for other approaches to routines like eating, dressing, taking medications, paying bills and the like. I’ll be referencing his advice in the smartphone book.